Showing posts with label type 1 diabetes. Show all posts
Showing posts with label type 1 diabetes. Show all posts

Thursday, October 12, 2017

Dear Sugar: A Letter to My Boobs During Breast Cancer Awareness Month

October is Breast Cancer Awareness Month.  Today I'm sharing my very recent journey.

Dear Boobs:

Ali Cummins Photography
I used to want you so bad.  It started in the third grade.  I heard a few girls on the playground gushing over a girl named Jessica.  Why?  They caught a glimpse of, wait for it....a bra strap.  Jessica was one of the cool girls with naturally gorgeous blonde hair (long and flowy, like a Disney princess), an on-trend wardrobe, and now, developing breasts. 

Around this same time, Judy Blume’s book Are You There God, It’s Me Margaret was becoming increasingly popular among girls my age, especially the section where the protagonist did a pectoral exercise while chanting, “I must, I must, I must increase my bust.”   

Boobs were it. If a girl possessed breasts (no matter how small), she possessed prestige, admiration, and maturity:  three things I desperately strived for. 

The next year at my January birthday party, my mom was creative.  Though it was frigid outside, we had a beach-themed party.   My friends and I wore our swimsuits, we had a cake that looked like an island, we made seashell necklaces, and we listened to my dad’s Beach Boys records.   

Before I headed down the carpeted steps to greet my first guest, I folded the swimsuit's shelf-bra liner up a few times to create (I thought) the appearance of curves.  Of course instead it just looked like wadded-up fabric (which was exactly what it was). 

Despite my efforts, even insisting that my mom buy me a lacy, pearl embellished training bra at JCPenney, long before I needed one, you refused to make your debut until I was well into the eighth grade.  Even then, you were nothing impressive.  I was long, lean, and awkward with zero athletic ability.  And you started to emerge (and it took all of high school for this cycle to be complete), my desire for you was replaced with the next milestone:  starting my period.   I didn’t appreciate you as I should have, even when I went from an A cup to a (pushing it) B cup.  

You managed to look OK enough through college and even in my Maggie Sottero two-piece wedding dress.  The corset top still required sewed-in push up pads, but you showed up well enough.   For four years, I enjoyed married life with confidence in my body, eventually joining a gym and relishing in building muscle while gossiping with girlfriends and half-assing it in step class. 

During this season, I found a breast lump, and persisted on having it examined and later extracted.  It was nothing but a non-cancerous mass.  At the time I was terrified, but I managed to handle it and move on.  

Then 2004 happened.  I was in graduate school, teaching writing to college freshman (who were just four years younger than me), and ended up getting a weird stomach virus.  That's a long story, but a year-and-half later, after over twenty medical appointments with five medical professionals, I wound up in the ER in Diabetic Ketoacidosis.  I finally had a diagnoses:  type 1 diabetes.   I was very fortunate to be alive.

I then began gaining back all the weight (and then some) that I had lost when my body went toxic.   Gaining weight meant gaining something I never really had before:  breasts!  Like real ones that looked ah-mazing in V-neck tops and swimsuit tops.  Diabetes sucked, but at least I got a few perks, including C-cup breasts.  

After the diabetes diagnosis, that's when I knew we would adopt.  My body had been through hell.  I wasn't willing to risk going down that path again, nor was I going to put a baby through that.   Adoption was the right choice for us.  

We had two children through adoption by 2011 when another knot appeared.  Another surgery, biopsy, and declaration that though it was a mass, it wasn’t cancerous.   In the clear.     

Breast ultrasounds and examinations by doctors became my norm.   I came to not only expect extra steps to be taken, but for the news to be good.   I almost felt like a professional.   Here I had experienced not only two breast lumps but a traumatic diagnosis and incredible survival story.   Surely I had enough things go wrong that from then on, everything would go right.   How could it not?

Six more years, two more children.  One of whom I had a nursing relationship with.   

Then this April...I figured my "extremely dense breasts" were throwing me another curve ball.  I figured the new lump was normal.  It wasn't.  

Breast cancer does not discriminate.  It does not care what color someone's skin is, how old she is, or even her history.  It does not care if someone has all or none of the "risk factors" we women hear so much about.  

It chose me.  It appeared, swiftly and angerly.  I do not know why.  I have been over it a thousand times.  Was it something I did?  Is it just because my body is whacked out?  Is it just the fact that one in eight women get breast cancer, and I was that "one"?  Why?  Why me?   Why after one disease did a second one arrive?

I could have preserved you, I was told.  I could have chosen a lumpectomy and six weeks of radiation.  But there was a possibility that I'd need to later do a mastectomy anyway.  That the cancer would come back, sneakily, in the opposite breast.  

I had a choice, certainly, but my goal was to give myself the best chance of not only survival, but for a life with less anxiety and doubt.  I needed peace, reassurance, and odds in my favor.  

So I chose to let you go. 

I gave you some good, hard looks.  I committed you to memory.   I hugged my kids and my husband a little tighter against you.   I realized you were JUST boobs but you were still boobs:  your importance and status instilled in me since childhood.  


On the day of my surgery, I was both nervous and confident.  I could do this.  I could do anything in Christ who gives me strength.  This wasn't an ending, but a second-chance, a powerful beginning.  

It's been a long month-and-a-half since the surgery.  I look down at you.  You are new and foreign, different and present, artificial and yet MINE.  You were purchased and chosen.  You are strange.

I do not regret my decision to bid the original you farewell.  It was the right and best choice.  Recovery has been tumultuous, a never-ending roller coaster of physical and emotional and mental and spiritual ups and downs.  And I have a feeling that recovery isn't just a season of physical healing, but a forever-state of remembering and considering.  Losing you left me scarred, physically and emotionally.  

But losing you also meant potentially saving my life.

   
I am sorry we couldn't be together forever, or at least longer. I miss you, though I'll be honest that most days I don't think too much about you.   My personality of "go big or go home" helped me decide to tell you goodbye and move forward.

I know I'll never be completely over you.  Cancer changes a person, inevitably and irrevocably.   Not having you is a constant reminder of what was, but I refuse to live steeped in regret and shame.  

My journey has been one of learning and listening.  Every time bad news arrived, I felt a new wave of spiritual warfare come over me.  But this time when I was told that having cancer meant possibly saying goodbye to you, I thought to myself, this isn't my first rodeo.  I've faced hard and scary times before, and every time I emerged victorious, stronger, and more confident.  

Cancer disrupted my life.  But it didn't defeat me.  My story, my journey, it continues.  And I have you to both blame and thank.   I have memories and a future.  I have hope.


Wednesday, July 19, 2017

Dear Sugar: The Day I Quit Working Out

Dear Sugar:

For fifteen years, I worked out consistently.  Working out helped me get through the stress of college (most of the time I was also working 2-3 jobs to pay my tuition bill).  Working out helped me manage the pressures of planning my wedding.   It aided me in managing my anxiety, my blood sugars, and keeping my weight steady.

When we were matched with our fourth child, I began to stop working out as much.  First, it was summer, and I had three children.   Second, I was a nervous wreck, slowly falling in love with the daughter who wasn't mine.  

When our daughter was born in September, I ceased working out.  And I noticed that some things happened.  Perhaps they sound familiar to you?

-I wasn't sleeping as well.
-My anxiety increased, in steady waves.  
-I had way less energy.  
-I was less coordinated and less strong.  
-I got hurt more easily (probably due to the aforementioned lack of coordination and strength).
-I was less motivated.  
-I dreaded the first two hours of every morning, because I was so slow to fully wake up.  
-My blood sugars crept higher more easily and quickly.  

Looking back, it was really a domino effect.   One thing leading to the next.  That feeling of helplessness and giving up, plus an awareness of spiraling "out of control."  I found a new normal, eventually, a normal of accepting that working out had succumbed to LIFE.  

Now, there's a natural break in routine with a newborn.  Feedings every two-three hours through the night, plus dealing with one child's restless leg syndrome, another child's sensory issues, and another one's asthma.   Then sick season where we got hit with strep and the flu (two solid weeks out of school).   

But for me, a type 1 diabetic, working out is essential.  Exercise lowers my blood sugar, gives me energy (which is needed since my energy-sucking disease needs a boost!), and decreases my anxiety (about everything, including my disease).

I hit rock bottom when a month ago, my hip was in excruciating pain.  I couldn't sit on the floor and play with my kids. Certain movement rendered me breathless.  The pain radiated down my thigh, around my knee, and down to my ankle.  I went to my chiropractor, then my general practitioner, and then to physical therapy.   I felt like I was 85 years old.  I mean really, hip pain?

Since doing the assigned exercises to increase flexibility, mobility, and strength, I'm slowly reintegrating working out back into my schedule.   It used to be non-negotiable.  I was THAT girl in the hotel gym on Christmas Eve, huffing and puffing on the treadmill.  

I'm trying to give myself a lot of grace.  And I'm trying to remember the WHY to working out.   

I share all this with you for a reason.   As a person who has been all over the proverbial map in terms of health, I want to offer a few "been there, done that" thoughts, hopefully so you do not end up in physical therapy:

1:  A lack of self-care is selfish, not selfless.
We are prompted to put our families first.  That's what good moms do, right?  WRONG!  Accept a temporary situation (a new baby) for what it is, but don't remain stagnant.  As my baby began sleeping through the night (and we did, too), I should have reintroduced exercise into my daily routine.  By not taking care of ME, I was not only hurting myself, but I ended up hurting my family with my limited ability to lift, play, and go! 

2:  Exercise isn't (just) about weight. 
Yes, you can lose weight or maintain your weight by exercising. Of course a healthy weight is important.  However, weight control is far more about what you put IN your body than exercise.  That said, there are SO many benefits to working out that go far beyond weight.  It's different for every person, but a few perks for me, when I work out, include:  I fall asleep easily and wake up energized, my anxiety decreases, and I feel empowered.  

3:  Exercise doesn't have to be what others like.
I.  Hate.  Running.   I hate it.   But I do like dancing, walking, and lifting weights.  I do what I love and reap the benefits!  Choose something you enjoy and do it.  

4:  Technology is great, but...
I'll be honest:  I think the whole FitBit, routing your run on your cell, tracking your diet in an app---I find these to be distractions.  I think some people find them helpful, and perhaps increase accountability, but fitness can be really, really simple.   

5:  Get the kids involved.
I've come to realize that my kids need to be included in my fitness routine since they are home all summer. They have their own set of free weights.  They have their own bikes and helmets (so they can pedal around the trail at the park while I walk, pushing the stroller). We love doing XBOX Just Dance! games together.  Again, these are not super strenuous things.  Because if it's not sort-of fun and occupies the kids, I'm not doing it.  Plus, it's really important to me to raise active, healthy children!  

What do you do for exercise?  What has gotten in the way of exercising in past, or what is getting in the way now?  What practical steps can you take to make a positive change?  


Wednesday, July 12, 2017

Dear Sugar: Happy Anniversary to Me and the Hubs!

Dear Sugar:

Today, my husband and I are celebrating 15 years of marriage. Here are some fun fact about us:

-We met at a church coffee house and concert event.  I saw a guy I thought was cute and was flirting with him, when a man approached me and said he knew my mom.  Turns out the man and my mom are cousins, and the guy I was flirting with?  MY COUSIN.  I turned away from him, met Steve, and flirted with him instead.   (We included this hysterical story in our wedding program!)

-When we met, I had a boyfriend, whom I promptly dumped.  

-When we started dating, I was 16; he was 19.  I was in high school, he was in college.  We had attended the same high school when I was a freshman and he was a senior, but we didn't know each other then.  

-Our first date was at Denny's.  He bought my hot chocolate.  He was the first guy I dated who paid for my food. 

-After another fun time at Denny's with church friends, Steve drove me home.  My parents grounded me for a week for riding home with a stranger-college-boy that they didn't know.  

-He attended (as a college guy!) both my junior and senior proms and two homecoming dances as my date.    

-He introduced me to country music, which I hated before, and within a few months of dating, I knew every lyric to every song.   He also introduced me to camping, boating, golfing, and hiking:  which is funny because we don't do any of those things now! 

-He proposed at sunset on Sanibel Island where we were vacationing with his parents.

-We dated five years before getting married.  

-I got married at age 21.  I walked down the aisle to the theme song ("Once Upon a Dream") from Disney's Sleeping Beauty, which was my favorite childhood movie.  

-Our reception was the very, very best.  Held in a place called "The Warehouse" with brick walls, strings of lights, and lots, and lots, and lots of dancing.   I had the most gorgeous (two piece!) dress!

-We honeymooned on The Outer Banks of North Carolina, which is where a ton of Nicholas Sparks' book plots take place.  

-In fifteen years, we lived in one townhouse and two houses.  Six graduations.   Five jobs for him.  Seven jobs for me.    

-My husband saved my life.  After being sick for 1.5 years with no proper diagnosis (despite visiting five medical professionals), one afternoon I took a long, long nap.  When Steve couldn't get in touch with me on my cell, he frantically drove home, put my shoes on me, and put me in the car.  He took me to the ER where I was told I was very lucky to be alive.  I was in a state called DKA (Diabetic Ketoacidosis) with a blood sugar of 700, which is 7x the norm.  

-I knew I wanted to adopt immediately after being diagnosed with type 1 diabetes.  It took Steve a year to come around to my plan.  
Us when we got THE call for our first child!  
-Steve's parents have been married 49 years.  Mine almost 38 years. Longevity!   

-Our biggest differences?  He's analytical, and I'm the visionary.   I make quick decisions, he takes a long time to make his decisions.   He is more flexible and forgiving, while I'm more passionate and erratic.   

-Sometimes we look at each other and say, "WE HAVE FOUR KIDS!"  God has blessed us with the family we never envisioned for ourselves.   God has the BEST surprises!   

Do we have a secret?  No.  We are flawed people.   But we have parents who modeled for us that "family is forever" and commitment is everything.  We're "in it to win it."   And one day, when the kids have jobs and families of their own, all my hubby wants to do is travel the country in his incredible RV.  God-willing, that's exactly where we will be.   

Cheers to us!  

How long have you been married?  What's your secret?